Signs and Symptoms

  • Reduced muscle tone
  • Hypertrophic cardiomyopathy
  • Difficulty swallowing
  • Failure to thrive

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Therapy and Treatment

Enzyme Replacement Therapy not only extends the lifespan of a Pompe patient,
Starting ERT early in infancy shows great promise in treating the disease.

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Funding and Support

We need your support and deeply appreciated your contributions.
Learn more about how you can help to save her.

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Newsflash
Written by Administrator
Saturday, 28 January 2012 00:00

We wish to thank MAKE-A-WISH FOUNDATION in getting the Supine Stander for Chloe. Her wish has come true and she can

now stand up to play with her toys. This can never happen without your donation and support.

We also like to thank Sam form DNR Wheels for bringing in the stander just for Chloe.

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We wish to thank SingHealth and KK Hospital for the "Inspirational Caregiver Award 2012". We are very grateful for the love,

care and support from the doctors and nurses in KK Hospital. We also wish to share this award with all the parents with rare

disease child at home. Together, we will match on and no matter what lies ahead, we will overcome them. You'll never walk

alone.

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Last night, "Touch of Hope" featured our story. Thank you KK Hospital for giving us this chance to share.
For those who missed the episode, you can watch it here.


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Thank you Sembawang Assembly of God! It is not a coincidence that we come to this church. Th>e very first support when
Chloe was diagnosed with Pompe came from our Pastor who came to the hospital to pray for her and the church also
started to raise fund for Chloe's treatment.

Read about how we experienced God's grace here

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As parents, we are not giving up on our child because she is a gift from God. We believe she is here for a purpose and
through her, we want to bring hope to all children and their families walking the same journey.
You'll never walk alone!

Someone responded to our story saying that Chloe should not receive treatment since its so costly and she will not
enjoy quality of life, and we should not seek help from the government as this kind of illness has nothing to do
with them. Instead, he may be made to pay more taxes should the government decided to fund Chloe's treatment .
Well, to each his own and some will have different schools of thought.To us, Chloe is a priceless angel. What about you?

To read about our story, please click

TheOnlineCitizen.com

Publichouse.sg

Asiaone.com

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